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Disability Advocates / Innovative Women - Heather & Jessica Tomko

Heather and Jessica Tomko are two inspiring sisters who refuse to let their disability define them. Living with SMA, a condition that weakens their muscles over time, they face numerous challenges every day. However, they remain committed to living life to the fullest and raising awareness about disabilities in the process.

SMA is a genetic disorder that affects the motor neurons, which control voluntary muscle movement. The condition ranges in severity, with some individuals experiencing mild symptoms while others become paralyzed and dependent on others for care. For Heather and Jessica, SMA was diagnosed during infancy, and they have been managing the condition their entire lives.

Despite their physical limitations, Heather and Jessica strive to fully participate in society. They have both pursued higher education, with Heather earning a Bachelor's degree in Communications and Jessica obtaining a Master's degree in Social Work. Additionally, they have worked to raise awareness about disabilities and promote accessibility. Heather has written articles and given speeches about living with SMA, while Jessica has worked as a social worker for individuals with disabilities.

One of the biggest challenges Heather and Jessica face is the inaccessibility of the world around them. From buildings without ramps to inaccessible transportation, they constantly encounter barriers that prevent them from fully participating in society. However, rather than accepting these limitations, they have become advocates for accessibility and have worked to raise awareness about the need for more inclusive environments.

Heather and Jessica are also dedicated to challenging stereotypes and promoting acceptance of disabilities. They recognize that society often views disabilities as something to be pitied or cured, rather than embraced as a part of human diversity. They hope to change this by speaking out about their experiences and encouraging others to view disability as a natural part of the human experience.

Overall, Heather and Jessica Tomko are an inspiration to all who know them. Despite the challenges they face, they remain committed to living life on their own terms and advocating for greater accessibility and acceptance. Their message is clear: disabilities do not define a person, and everyone should have the opportunity to fully participate in society, regardless of their physical limitations.

RESOURCES MENTIONED:
► Heather's blog: https://theheatherreport.com
► Heather's Instagram: https://www.instagram.com/theheatherreport
► Heather's work: https://www.caregiving.pitt.edu
► Jessica's Instagram: https://www.instagram.com/jessicatomko
► Article that Jessica wrote: https://triblive.com/opinion/jessica-tomko-disability-representation-in-the-entertainment-industry
► Film Pittsburgh Reel Abilities Festival: https://filmpittsburgh.org/pages/reelabilities

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CHAPTERS:
00:00 Preview
01:09 Early Life
02:01 Spinal Muscular Atrophy (SMA) Diagnosis
05:39 Relationship as Sisters and with Parents
12:30 Colleges & Careers
19:18 Heather's Work
22:12 Jessica's Work
23:52 Billboard Message
26:30 How will you two leave your marks?

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